In the daily practice at the Psycho-pedagogical Service it"s difficult to separate the psychological and pedagogical attention: on one hand, there are interviews with a high educational content, focused on prevention and self care. On the other hand, there are interventions with a high philosophical and pedagogical content specially used when people are dying.
Psycho-pedagogical attention at home: one of the most powerful reasons that moved the partners of ASHEGUI to create the Psycho-pedagogical Service was the tragedy lived in those years in the haemophilia community. They had to respond to it, so they saw that a Service was needed, therefore they decide to attend the collective by a different approach than the strictly medical.
During the last years, this kind of attention has changed the most. Since it is related to the HIV and Hepatitis C virus tragedy. Because of this, affected people had to stay in bed for many years and the Service was due to give psycho-pedagogical attention at home.
These are framed interviews with a specific working planning: it can cause deep changes and also it can mean a great inside effort and discipline in a person. There are included also interviews for an accurate need, not framed, that could be misunderstood with a crisis intervention. When a partner has a severe psychological problem, is drift to a specialist or a psychiatrist, depending on the situation, because the psycho-pedagogic action area does not include psychological sickness. Anyway, the Service is adjusted to the requests and needs of people. The affected people and their families are who set the working rhythm.
Telephone has been a very useful way of contact, communication and support for our partners, because for many of them to travel to the hospital is not easy at all. Most of the phone psycho-pedagogical interventions are crisis interventions.
Psycho-pedagogical interventions in Hospital environment
The Psycho-pedagogical Service takes part in these areas:
The ASHEGUI"s professional keeps daily contact if the patient agrees. The intervention extends to the family. Usually, the interventions are psychological, however, in many cases, it can be philosophical. All the areas we have spoken about are reflected in the graphic where we can see the work volume and the evolution. The results of what we call hospital care has been very positive for ASHEGUI. In fact, to support, to advise, to help, to be with our partners in very difficult situations; such us being in hospital with a serious problem, give us the strength and motivates Ashegui"s staff to keep on working.
Information about social services through the experts of the Spanish Federation of Haemophilia
The social interventions have a big repercussion in the collective as we can see in the graphic we have included.
We specially appreciate the collaboration and whole treatment from the different Medical Services through teamwork. Looking for communication and collaboration with the more needed specialists by the patients. The perspective and response to a crisis situation is more suitable, under any point of view, and this fact will redound in the benefit of the patient. We differentiate multidiciplinarity in several levels:
The prearranged meetings with different specialists started in 1997, eighteen months after the Psycho-pedagogical Service was created. The project included all the medical services attending haemophiliacs as well as the Psycho-pedagogical Service. In the attached document, you will see the evolution of those meetings through the years. Even a lot of complications have appeared; we have achieved to maintain a work rhythm, being affected person the most benefit from it. On the other side, we show you in a second graphic the track record in this section, related to different kind of relationships with medical staff. We find the proportion of contacts with them very meaningful.